Seer Data Use Agreement

SEER Data Use Agreement: What You Need to Know

The Surveillance, Epidemiology, and End Results (SEER) Program is a valuable resource for researchers, clinicians, and policymakers in the field of cancer research. SEER collects and maintains data on cancer incidence, survival, and mortality rates in the United States. However, the use of SEER data is subject to certain restrictions and regulations, including the SEER Data Use Agreement (DUA).

What is the SEER Data Use Agreement?

The SEER DUA is a legally binding contract that outlines the terms and conditions for the use of SEER data. The agreement is designed to protect the privacy of cancer patients and their families by ensuring that their information is used only for approved research purposes. The DUA is required for all researchers, institutions, and organizations that wish to access SEER data.

What are the requirements for obtaining a SEER Data Use Agreement?

To obtain a SEER DUA, researchers must submit a detailed research proposal to the National Cancer Institute (NCI). The proposal should include information about the research objectives, study design, research team, and data analysis plan. The NCI will review the proposal and evaluate it based on several criteria, including the scientific merit of the research, the potential benefits to cancer patients and their families, and the potential risks to patient privacy.

Once the proposal has been approved, the researcher or organization must sign the SEER DUA and agree to comply with all its terms and conditions. These may include requirements for data security, confidentiality, and reporting of findings. The DUA also specifies the duration of the data use agreement, which is typically three years.

What are the benefits of using SEER data?

SEER data provides valuable information on cancer incidence, mortality, and survival rates in the United States. Researchers, clinicians, and policymakers can use this information to identify trends, patterns, and risk factors for various types of cancer. SEER data can also be used to evaluate the effectiveness of cancer screening and treatment programs, as well as to develop new interventions and therapies.

In addition to its research benefits, SEER data can also help cancer patients and their families make informed decisions about their care. By providing information on cancer incidence, survival rates, and treatment options, SEER data can help patients and their families understand the risks and benefits of different treatments and make informed decisions about their care.

Conclusion

The SEER Data Use Agreement is an important tool for ensuring that SEER data is used appropriately and ethically. By requiring researchers, institutions, and organizations to comply with strict regulations and standards, the DUA helps protect the privacy of cancer patients and their families while promoting important cancer research. If you are a researcher or organization interested in using SEER data, it is important to familiarize yourself with the SEER DUA and its requirements.

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